Wonderful, amazing, happy

Sorry it has taken me so long to update the blog. It has been another edge of your seat kind of day and I needed some time to unwind. I bet you can guess from the title that Mason is doing great. :)

My sister/friend Tiff came up for another visit and she took me out so I could decompress after the long day. I swear she's better than a therapist.

So this afternoon I had many Dr's all come to me to tell me that you were going to be intubated today. It was inevitable. Your weren't blowing off your carbon dioxide (which is a poison) enough and your levels were getting to dangerously high levels.

I agreed with the Dr's that if you were in failure then intubation was the next step but that you had done well in the CTICU on the vent through the nasal cannula and I thought we should give that a try.

The Dr's didn't feel that would improve the situation but agreed to at least give the high flow a try. So we deiced to put you on high flow at 4 liters nasal cannula and do an ABG (oxygen level by blood test) in an hour.


Before the high flow your CO2 level was 62 and after an hour on the flowby your CO2 level was 48!!


All the Dr's were amazed that you were able to lower you CO2 level by 14 points in only an hour.

I just knew, even though they kept telling me otherwise, that you just needed that "push" of air to help keep your airway open.

An of course I knew how many of wonderful people were out there on team Mason were sending prayers and good thoughts for you and with that kind of support you just had to pull through.


I like being right.


So now if your respiratory status stays stable we will wait till Monday for the Dr. to take another look at your trachea and for your feeding tube surgery.


Keeping our fingers crossed for a few uneventful days.

As stressful as the afternoon was the morning was so much fun. I had the pleasure of meeting Ruben and his dad Jason who were at CHLA for a CT scan. Ruben is also an amazing CHARGE'er like Mason. His Mom Cathrine has a great blog here. Her photography is just beautiful.

Ruben is such an inspiration. So intelligent and sweet it's impossible not to fall in love with him instantly.

Ruben's dad was so nice to answer my 100's of questions. I'm hoping we get to see Ruben and his family again soon and I just can't wait to meet his little brother Callum. I heard tons about him.

How adorable is he?

Mason and Ruben meeting for the first time

So thank you all again for all the good thoughts and prayers. Your love and support mean the world to us.

Mason isn't doing so well

the pulmonologist is concerned he is going into respiratory failure again. We are only two steps away from getting re-intubated.

I'm pushing the ENT Dr to get in to see you sooner than Monday now that you are in failure again. We will see what happens.

So once again I'm asking. Send out thoughts and prayers that Mason is able to breath well enough to stay off the breathing machine please. Your support, good thoughts, and prayers have carried us through some dark days.

We were hoping we wouldn't need it again but we are so blessed to have you all on Mason's team.

I had a wonderful time this morning getting to meet Ruben and his Dad Jason. Will blog, and post pictures, about it later tonight.