From what I understand this could mean a lot of things. That either you are profoundly deaf in both ears, profoundly deaf only one ear with partial hearing in the other, or it could mean that you have only partial hearing in both ears.
We wont know for sure for a few more months and more test but for sure you have a least a some degree of hearing loss.
I read that 90% of those with charge have some degree of hearing loss so I was not surprised but it was still hard to get the results.
I wonder if I will be able to torture you with my singing like I do your brother? Well if nothing else I've been holding you close to my chest so you can feel me singing to you.
The insurance company is fine with us transferring to Loma Linda if our medical group will pay for it. Our medical group is fine with us transferring to Loma Linda if our insurance will pay for it. Both are saying heck no they wont pay.
So it doesn't sound like we are going anywhere anytime soon.
You poor Dad is spend endless hours on the phone with the various case managers and will continue to fight for the transfer but for now we are going on as if we will have to stay here.
The Dr's at CHLA have ordered your sleep study and a GI Dr to see you so we can get your feeding tube surgery done.
We think once these two things are done, and treated as necessary, we SHOULD be able to get home but we don't know how long that will take.
We are going to ask for a case conference with the Dr's to find out what has to be done, and how long they think it will take, till we discharged home.
They have put your feedings back to bolus (larger amount in a shorter amount of time) to get closer to what a regular feeding from a bottle would be like. You are doing well so far, and if you continue to do so we wont have to give you your feedings with a pump.
The nurse giving instructions (note the illegal diet Coke on the table)
Could you be any sweeter?
