I've spent the afternoon with you. You've been sleeping on and off and catching up on your sleep. When your awake you've been crying and unhappy. Right now your obsessed with sucking on a damp rag. At first I just assumed that maybe your throat was sore from the tubes but I finally realized your hungry. Starving actually. It never occurred to me because you've been tube fed continuously pretty much since birth and have never known was it is to be hungry.
They started you on a small amount of Pedialyte. As long as you tolerate it well they will increase it up every hour and should have you back on your formula by tonight.
We've been weaning you off the oxygen. You now only on 4 liters and should go down to 2 liters in just a little bit. I'm not sure if you will be able to go back to room air tonight but we should get you pretty close.
Your blood pressure is still high even on medications so it doesn't look like we will be able to go home tomorrow. Maybe either late tomorrow night or Monday morning (most likely) either way your are doing and looking so well your Dad and I just don't know what to do with ourselves.
Cousin Lauren and cousin Whitney came for a visit. You were happy to see them but mostly you just wanted to suck on your towel.
I want to say thank you so much to everyone for all the support, prayers, comments, and good wishes. George and I can't help but feel like you've been a big part of Mason doing so well and getting us so much closer to home.
We appreciate each and everyone of you so much. I know I've said it before but it feels so much better to know we aren't alone.
Go Team Mason!!