Thursday, January 6, 2011

Meeting my son

I got to meet you my love!! I can't tell you how wonderful it was. I'm actually surprised I was able to wait as long as I did. I think the Versed the Dr gave me helped.

It was a bit of a rough trip with me getting sick, and bleeding a bit but oh so worth it.


Mommy and me

A lot of equipment but unfortunately only the beginning.

I fixed your sign and added your first name right after this. I can't wait to get your heart name sign and photos I made for you.


Dr Li. He's a great Dr and I think he's figured out that I wouldn't do anything to hurt myself and he really wouldn't be able to stop me anyway so he's given me the clear to go and see him as often as I want.

So an update to my update..

Mason did NOT get intubated. Wonderful amazing news. He is getting a tiny bit of oxygen but only as a safety precaution because of the side effects of some of the medication he is on.

We got to see the Neonatologist. Dr Carol (I think) she updated us on his condition which is very stable and looking great. She really thinks, or hopes, that the palsy is temporary but we will have to wait and see.

I forgot to mention that his umbilical cord was wrapped around his neck twice in the delivery (yet another reason why a CS was the right thing for him), pretty tight from what they say, and that is what the Dr thinks might have caused the Bells palsy in his right face.

If it doesn't improve in a few days we will get a neurologist to find out the cause and, hopefully, a treatment. Really it's the least of his problems and not our greatest concern, but if it was caused by trauma rather than the DiGeorge syndrome that would be one more thing in favor of him not having the syndrome.

The Dr said she does believe that she saw the parathyroid gland on his Xray and if that's true than he DOES NOT have DiGeorge's syndrome.

Oh please friends, family, and all, please send all your good thoughts and prayers that it isn't DiGeorge's.

The diagnosis wouldn't be the worst thing ever but it would be wonderful to have one less thing to affect his long term prognosis and further compromise his heart.

***OK update to my update***

I'm feeling great, Daddy is snoozing besides me in the cot they have in our room. I was able to walk to the NICU all by myself and, while I'm a little sore, I had no problems. Except I got there during shift change and had to come back without seeing you.

I cried on the way back a bit but am heading back there now. I just plan on sitting a little while with you and then I will come back and try and get some real sleep. It's just so hard to be away from you even though I know they are taking great care of you.

I need to say that I think the NICU nurses got a "carebotomy" at some point. They are nice enough but I feel very little compassion from them (and this has nothing to do with shift change) and while I know they are technically super professional and skilled at what they do. It hurts my heart a little. As a mommy it would just help to feel like the people caring for you, cared. It would be easier to walk away that way.

Well tomorrow is another day and new nurses. Perhaps if I get some sleep I will feel better about the nurses. I hope we will get a great one.

How exciting! My friend Val from Valerie Ackerman photography came and took pictures for us. The Dr's actually allowed her into the operating room to photograph the CS. I so didn't think that was going to happen.

Here's a sneak peak...

This photo just melts my heart!! I think you look just like Pierce. You can see the palsy a bit here.

The 0.2 seconds they let me see you. You looked like Aunt Lisa to me. <3


Thank you Val! I can't express how much I love them.

4 comments:

Sarah Elizabeth said... Best Blogger Tips

He's beautiful, Amy - you and G make some gorgeous kids!! I can't wait to meet him!

Valerie said... Best Blogger Tips

This is a wonderful update! Little Mason has all my love! <3

Amanda Brantley said... Best Blogger Tips

Found you thru Kristins site-I am thinking of you and your fam & sweet boy-praying for complete healing in the name of Jesus!

Tiki said... Best Blogger Tips

Beautiful photos....blessings to you all.
**heart hugs** from a heart mom