Wednesday, January 26, 2011

Playing catch-up and an update

First things first.... as I type this it's 9:30 pm and you have been off the breathing machines for...wait for it....wait........ 29 1/2 hours!!!!

Not only are you off the machine but your blood oxygen levels are actually improving.

Get out your twirly skirt and get ready to sing with me!!!

So the laptop was out of commission for a day. Your mad genius father managed to Macgyver it (with only a set of small screw drivers and spit!) and we are back up and running. I tell you your Dad is handy to have around.

We haven't really blogged for three days so forgive if this is long but I have a lot to catch-up on.

First Monday was your two week re-birth day and don't you look marvelous darling! Not only are you off the vent now but you also got your pacer wires removed, the Art line and stitches from your right wrist, and the sutures from your chest tubes taken out. You have so many less wires your almost easy to pick up.

Monday January 24th 2 week re-birthday

On Monday you also had a Laryngoscopy and a Bronchoscopy which Dad already explained here.

Off for your next procedure

Down the same hallway they took you for your heart surgery.
If I never see these double doors again it will be too soon!

The examination of your throat and down to you lungs showed that you have a Laryngomalacia (image 001 and close up 002) It's best described as floppy tissue above the vocal cords that falls into the airway when you breath in. This explains the gasping noise you make when you breath in and out.

They also found that you have a stricture of your trachea (image 003) and, just because you can never do anything boring way, you also have an opening from your trachea to your lungs (image 004) that is very uncommon but not something that will, or is, causing you any problems. It's just unusual.

So there is a surgery that can get rid of the floppy tissue above the vocal cords but they only do this surgery when it's medically necessary (ie something like breathing problems). Your Dad and I are quite surprised that you not being able to breath without the aid of a breathing machine didn't qualify as medically necessary but OK.

The really great news is that BOTH your vocal cords are there, and working great. Now they just think you need more time till you can make a louder cry and such.

The little hat they had on your head during surgery. Adorable no?

I thought it would look cute on your glow horse so he's wearing it now. I don't think you mind. It was a little tight for your big 'o head.

You and Glowy rehashing you day

You are working on your first evil master plan!

Tuesday you had a full body MRI. They wanted to avoid having to sedate you (and then have to intubate you) so we kept you awake so you would hopefully sleep right through the test. We gave you your first bath (with wipes) to clean you up and keep you awake.

You loved liked hated every second of it. Just look at how mad you are!

It took 3 1/2 hours. They said you did great and only moved a little bit so no sedation needed. We got the results today. You have all your ear bones (missing in many CHARGE babies) so yay!
An other than one weird artery to your head (which they are looking into but don't think is important) you look fantastic.

Well there is more to update you on but I can barley keep my eyes open so I will try and post about your first experience eating tomorrow.
30 hrs now off the vent!
You constantly amaze me.

I can't wait to amaze all your Dr's!


The Houston Family said... Best Blogger Tips

So much good news! Prayers are being answered!

Melissa said... Best Blogger Tips

I am glad things are looking up!! I just have to say it...HE IS ABSOLUTELY ADORABLE!! Way to go Mason you are such a Fighter!!

Melissa (Mom to Maccoy TOF)

Anthony and Ashleys Mommy said... Best Blogger Tips

My son had Laryngomalacia. It sounded like weezing and we really noticed it when he started walking/running around. But the moment you picked him up and he wasn't breathing hard it would stop. I don't hear the weezing sound anymore. He's now 3 years old

Mandy said... Best Blogger Tips

Thank you so much for your updates. I visit your blog daily and am so glad to see things are improving. I pray for Mason, you, and your family each day. God can - and will - do amazing things if you trust in Him. Congrats on what is turning out to be a very excellent week!

Cindy said... Best Blogger Tips

Soooo happy to hear the news!! Olivia still sleeps every night with her glow seahorse. just had to turn the music off because sometime she slept on top of it and we would hear it all night playing music.

Debbie said... Best Blogger Tips

Thank you for sharing all the little details. They are so informative to your readers and will make a wonderful journal for you and your family to look back on. Just look how far you've come! Continue to share specific prayer requests and we'll continue to pray for your family.

Dena said... Best Blogger Tips

Such wonderful news...Thank you for sharing it with us, we continue to pray for all of you! Mason is adorable and what an amazing fighter he is!