A ridcoulsly cute picture that Auntie Tiff took of you.
Today we tried to wean you from the vent and you didn't last a whole 20 minuets and it was so hard on you. We are really starting to get worried about your respiratory status.
Your hemoglobin and hematocrit (blood levels) are low and we can't figure out why so your getting another blood transfusion.
You've lost weight.
Your restless and unhappy.
You suck on the pacifier but it no longer satisfies you. We think you finally getting hungry but we can't feed you while you remain on the breathing machine. Everyday they tell us tomorrow we they will feed you but it doesn't happen..
Your Dad and I are feeling so disheartened and we are overwhelmed with worry.
You are getting a picc line tomorrow (IV that can stay in long term) and they plan on giving you anesthesia and will have to re-intubate you. I'm strongly against putting back on the breathing machine for any other reason then respiratory failure but it's the policy of the hospital and there is not much I can do about it. You do really need the Picc line.
I've assisted in 100's of Picc lines and have NEVER need to sedate a patient so I thing it's ridiculous that they feel it's necessary. If you get intubated and can't get back off we will be set back days. I will not be happy and have told the Dr's this.
It's so hard to watch you. Your sick of all of it. The pokes, the test, lying there day after day. This is so hard.
I'm hoping in a day or two we will have made progress and today will be long behind us.
The first pic Auntie T took of me I had a big fake smile so she made me laugh and took another one